Who We Are
The Jack Langseder ForeverSTRONG Foundation was established to honor the memory of Jack Desmond Langseder, who passed away in October 2009 following a courageous battle with cancer. The Foundation is dedicated to funding research for Ewing’s Sarcoma, a rare pediatric cancer, and increase awareness of the challenges of this disease. We believe research is the key to the cure.
About Ewing's Sarcoma
Its causes are unknown, making Ewing’s Sarcoma an intriguing condition. Nothing is known that can ultimately stop it, such as a vaccine would stop a virus. There is also mystery surrounding why it almost always only affects Caucasians, particularly teen boys. This cancer sets itself apart from other cancers in that it harvests itself on bone tissue, something most people would never suspect.
What Is It?
Ewing's Sarcoma is a cancer that affects the bone, more commonly found in the ribs, the femur, the pelvis, and the humerus. Its most common site is the diaphyses of the femur. Ewing's Sarcoma's cells can metastasize to other areas of the body including bone marrow, the heart, and the lungs, making it very dangerous.
Pain and swelling are the primary indicators of the cancer, which can be accompanied by redness, fever, weight loss, fatigue, and paralysis if the tumor is in the spinal region. Other signs include numbness in the area and small protrusions visible on the epidermis of the appendage affected. Ewing’s Sarcoma is often mistaken for a sports injury and treated as such prior to diagnosis.
The disease is exclusively limited to Caucasians, with males being more prone to it than females. It develops between the ages of 10 and 20, making it mainly a disease affecting adolescents. It occurs in every one teenager out of 50,000 and accounts for 30% of bone cancers in children.
A combination of chemotherapy or radiation is needed with surgery to battle the malignant tumor. After a biopsy, an excision may be performed after confirming the malignancy of the tumor.
The purpose of chemotherapy and/or radiation is to stunt the growth of the tumor and eventually diminish it and prevent it from reoccurring. It is also an effective method since metastasis may have occurred upon the diagnosis, allowing it to dissipate the cancer at any location in the body where it might have been spreading to.
Chemotherapy may last from 6 to 12 months while radiation therapy can last from 5 to 8 weeks. Survival of the localized disease (contained in one area) with chemotherapy is from 65-70%. Long term survival for metastatic disease (spread) is 25-30%.
Associated Content: Health & Wellness
About Pediatric Cancer
Nearly 30% of the US population is less than 20 yrs old.
The risk of any single individual developing cancer by age 20 is approximately one in 330.
In the US, approximately 10,500 children under age 15 and 3,700 adolescents ages 15-19 are newly diagnosed with cancer each year. That is roughly the equivalent of two average size classrooms (35-46 kids) diagnosed each school day.
For children between 1-19 yrs, cancer is the fourth leading cause of death overall, and the leading cause of disease related death. It remains responsible for more deaths from ages 1-19 than asthma, diabetes, cystic fibrosis and AIDS combined.
Another rough estimate would be that 150,000 potential life years are lost annually to childhood cancer.
Over the period from 1975-1995 the incidence of pediatric cancer increased by approximately 12% but mostly due to improved detection. The rate of most childhood cancers has been stable although the incidence of melanoma in children is increasing by 1.5-3% per year.
Mortality from pediatric cancer has been steadily decreasing (due to improved supportive care and clinical trials). In December 2007, the Centers for Disease Control and Prevention (CDC) reported a 20 percent decline in the pediatric cancer death rate between 1990 and 2004.
The overall survival from pediatric cancer is estimated to be 75%-80%, and the majority of these are considered “cured” (In the early 1950s less than 10 percent, and before the 1970s less than 50% of children with cancer could be cured).
We are continuing to see late deaths of children presumed “cured” due to late relapses, toxicity and secondary malignancy.
Combined, the cancers of children, adolescents and young adults to age 20 are the sixth most common cancer in the U.S.
In is estimated that about 1 in every 450 adults is a childhood cancer survivor.
For every six research dollars per patient with AIDS and every one research dollar per patient with breast cancer, a child with cancer receives 30 cents.
CureSearch represents the combined efforts of the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF)